www.parkinsonscambridge.org.uk

Local Support

Parkinson’s Specialist Nurses

  • Work closely with Local Advisors (previously called Information and Support Workers ISW's), patients, therapists, consultants and neurologists
  • Advise in specialist areas which require particular expertise including medication
  • Have a role in educating professional carers about PD including those in nursing and residential homes

The Parkinson’s Disease Nurse Specialist Team can be reached on 01223 723018.  Please note that the Nurses are often out and about on visits or attending clinics, if you need them to call you back please make sure you leave your full name and telephone number with a message on their answerphone.  Alternatively Parkinson’s UK offer a call back service from a Parkinson’s Nurse employed by the charity.  (This Nurse will not have access to your individual records but can give advice about Parkinson’s symptom management and medication management etc).  Call the Parkinson’s UK helpline on 0808 800 0303 Mon-Fri 9am-8pm and Saturday 10am-2pm to access this service.  For any urgent medical issues please contact your GP or out of hours service.

Local Advisers work in conjunction with Specialist Nurses and will, if required, visit people in their own homes to provide individual counselling and practical help.

The service provides:

  • Up-to-date information on Parkinson's
  • Emotional support to people with Parkinson's, their families and carers
  • Information about disability benefits and how to access them
  • Information about, and access to, local statutory and voluntary services
  • Advocacy with issues such as pursuing complaints and support during assessments and reviews
  • Access to other Parkinson’s UK services.

 

Addenbrooke’s Hospital Parkinson’s Specialist Nurses

There are normally 2 Parkinson’s Specialist Nurses based at Addenbrooke’s Hospital in Cambridge.  They work across all of the wards in the hospital and ensure that patients with Parkinson’s get the services they need during their hospital stay.  They link closely with Consultants who specialise in treating Parkinson’s and also the community Parkinson’s Specialist Nurses.   Their contact telephone number at Addenbrooke’s Hospital is 01223 349814.

 

As of October 2017, the 2 Addenbrooke’s nurses will have left and there will be a gap in coverage for a period. If people are having any difficulty when they or their family members are in hospital, they are welcome to call Candy Stokes, Parkinson’s UK Local Adviser and she will do her best to help.

 

Ways she can help on this are :

·         provide information materials about Get It On Time, these can be useful back up for people to have, to help them feel confident to speak to ward staff about any issues with medication timing

·         encourage and support people to speak to ward staff about the importance of, and essential nature of medication timing for people with Parkinson’s

·         Speak to the Parkinson’s nurse team on behalf of the patient in hospital – again with their consent – to ask them to assist

·         liaise with ward staff (where possible)  as a form of advocacy – with the consent of those concerned

 

Candy Stokes

Parkinson’s Local Adviser for Fenland,  East Cambs, South Cambs and Cambridge City 

Parkinson’s UK

 

0344 225 3618

cstokes@parkinsons.org.uk

Please note that she normally works Monday to Wednesday  

 

Information Group

This course led by the Specialist Nurse is run at regular intervals for people with Parkinson’s and their carers at Brookfields Hospital.
Therapists cover advice about medication, diet, physiotherapy, speech therapy, occupational therapy and relaxation plus information about other help available from the charity. Contact the Specialist Nurses' office on 01223 723018

 

Contacts for Carers (not specifically Parkinson's)

 

Carers Trust Cambridgeshire

This organisation can help alleviate the burden of caring by arranging time off for carers. Some care can be free under certain circumstances. They can also organise emergency respite for the cared for person should the carer be taken ill (known as the ICER scheme). Call 0345 241 0954 or 01480 499090 to see how they can help.

 

Carers’ Information Service:  Carers Direct

The Department of Health has launched a telephone advice line and online information service for carers in England.  Carers Direct includes information on a range of topics including benefits and links to local services and support.  Visit www.nhs.uk/carersdirect

 

A freephone Carers Helpline is available seven days a week and the number is 0300 123 1053. The helpline is open from 9am-8pm Monday to Friday, and from 11am-4pm at weekends

 

Help With Care Choices

There is a useful book which gives information about the availability of Care of all types in Cambridgeshire.  The address of its website is www.carechoices.co.uk  It can be consulted on-line and information is given for each county.

 

Care Choices provides free public information services to assist in your search for care information. There are two services:

For care of disabled adults (16 - 64) there is the Disabilities Care Register.

For care of the elderly there is the Care Select Helpline Service.

Through the completion of a short questionnaire they are able to provide you with a short-list of appropriate care providers that meet your requirements and preferences. Both services can be accessed calling the helpline on 0800 389 2077 or online.

 

 

 

Our Branch Help at Hand Scheme

 

 The scheme provides ‘crisis funds’ or financial help when an emergency, short term problem or issue arises, such as when :-

 

·   a carer is suddenly taken ill and more help at home is needed;

·   an urgent domestic problem arises;

·   help is needed with transport costs such as to hospital, a Parkinson’s disease related appointment or branch functions; and in addition if

·   a few sessions of an approved alternative therapy would alleviate symptoms or stress.

These are just examples: other needs will be considered, so please ask.

 

 

 

Rules of the scheme

 

·       funds are only provided for Branch members and their carers

·       payments are limited to £150 per annum per household

·       payment can cover all or part of costs

·       The branch does not organise the help; it is up to the applicant to arrange it

·       receipts for expenditure are required in all cases

·       prior approval is normally needed but retrospective applications will be considered for costs incurred in an emergency

·       applications are considered by two branch committee members who form the ‘approval panel’

·       all applications will be dealt with in strict confidence by the  approval panel;  no names appear in the branch accounts

·       there is no means testing

 

Click here for an application form

 

This page updated 22 September 2017